Little Help From My Friends

I need help. Not even gonna pretend like we have everything 100% under control. We need help. Right now, via prayers for the mountain of paperwork we mailed today. Unless you wanna come over and babysit, I'll take that too. :)

There are a lot of if/then/maybes involved, but we are really hoping everything works out.

We just got a social worker. There's so much help out there we're just now finding out about.

As of now, our family is not eligible for Medical Assistance (MA). BUT, there's a program called TEFRA, for special needs children and families. Basically, IF Elsie is approved and all the exemptions go through, we can purchase a secondary MA/TEFRA insurance policy for a monthly parental fee, at a very discounted rate, via sliding scale.

This is HUGE because, Autism is really stinking expensive.  Our private insurance is not super duper amazing, and they're picky about what Autism treatments they feel like helping with and/or feel are necessary. And our deductible is just dumb.

TEFRA, (MA), is HUGE because state insurance covers ALL Autism treatment. A new bill just passed. So, if ,if and if, we could have all the overages of all Elsie's care covered through her secondary insurance. Funny, how you feel a little different about Obamacare when it may affect your own family.

IF Elsie is approved, and IF the parental fee makes sense, we can MAYBE use some of those state dollars for some help around here. We MIGHT be able to get a PCA to spend an allotted number of weekly hours working with Elsie, or a housekeeper, or a teacher to continue working with her in our home. Or, we can hire our own personal care team to work with her for however many weekly hours we are approved. SWEET!!!! She's already been PCA approved, but we can't use those services unless we get all the MA exemptions and get approved for TEFRA. It's all very confusing and backwards.

We've also just learned of two different grants. Again, IF we are approved, IF the exceptions go through, and IF there's enough dollars left in the state/county budget, we MIGHT be approved for a grant.

This is HUGE because those grant dollars can be used for adaptive equipment, respite, or home safety items. Home safety items like a privacy fence, home security system, or a GPS bracelet that she isn't able to remove.

if/then/maybe/might.....all this COULD work out. In the meantime, please say some prayers that we're on the road to getting some help keeping our sweet angel safe!